What This Bill Does
This bill extends the National Alzheimer's Project, which coordinates the nation's efforts to address Alzheimer's disease. The bill updates the project's goals and expands the group of government agencies and experts involved in the work.
Who It Affects
The Department of Health and Human Services, the Department of Justice, the Federal Emergency Management Agency, the Social Security Administration, researchers studying Alzheimer's disease and dementia, people with Alzheimer's disease, and populations at higher risk for developing Alzheimer's disease.
Key Provisions
* The project must promote healthy aging and work to reduce risk factors for Alzheimer's disease (Sec. 2(c)(4)).
* The project must provide information on healthy behaviors that may reduce the risk of cognitive decline, which means loss of thinking and memory abilities (Sec. 2(c)(6)).
* The group overseeing the project must include representatives from the Department of Justice, the Federal Emergency Management Agency, and the Social Security Administration (Sec. 2(e)(2)(A)).
* The project must include at least one person with an Alzheimer's disease diagnosis and one representative from populations at markedly higher lifetime risk for developing Alzheimer's (Sec. 2(e)(2)(A)(vii) and (viii)).
* The project must conduct yearly evaluations instead of just an initial evaluation (Sec. 2(e)(5)(A)).
What Changes
The bill adds new goals focused on healthy aging and risk reduction. It expands the coordinating group to include three federal agencies that were not previously listed. It requires the group to include a person with Alzheimer's disease and someone from a historically underserved population. It changes evaluation timelines from one-time reviews to yearly reviews. The bill extends reporting deadlines from 2025 to 2035.
Important Definitions
None defined in bill text.
[118th Congress Public Law 92]
[From the U.S. Government Publishing Office] [[Page 1561]] NAPA REAUTHORIZATION ACT [[Page 138 STAT. 1562]] Public Law 118-92
118th Congress An Act To extend the National Alzheimer's Project. <<NOTE: Oct. 1, 2024 - [S. 133]>> Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled, <<NOTE: NAPA Reauthorization Act.>> SECTION 1. <<NOTE: 42 USC 11201 note.>> SHORT TITLE. This Act may be cited as the ``NAPA Reauthorization Act''.
SEC. 2. EXTENSION OF PROJECT. Section 2 of the National Alzheimer's Project Act (42 U.S.C. 11225) is amended-- (1) in subsection (c)-- (A) in paragraph (2), by striking ``and coordination of'' and inserting ``on, and coordination of,''; (B) in paragraph (4)-- (i) by redesignating subparagraphs (A) and (B) as subparagraphs (B) and (C), respectively; and (ii) by inserting before subparagraph (B), as so redesignated, the following: ``(A) promotion of healthy aging and reduction and mitigation of risk factors for Alzheimer's;''; (C) in paragraph (5)-- (i) by inserting ``and other underserved populations, including individuals with developmental disabilities such as Down syndrome,'' after ``populations''; and (ii) by striking ``; and'' and inserting a semicolon; (D) by redesignating paragraph (6) as paragraph (7); and (E) by inserting after paragraph (5) the following: ``(6) provide information on, and promote the adoption of, healthy behaviors that may reduce the risk of cognitive decline and promote and protect cognitive health; and''; (2) in subsection (d)(2)-- (A) by inserting ``, across public and private sectors,'' after ``Nation's progress''; and (B) by inserting ``, including consideration of public-private collaborations, as appropriate'' before the period; (3) in subsection (e)-- (A) in paragraph (2)-- (i) in subparagraph (A), by adding at the end the following: ``(xi) A designee of the Department of Justice. ``(xii) A designee of the Federal Emergency Management Agency. [[Page 138 STAT. 1563]] ``(xiii) A designee of the Social Security Administration. ``(xiv) 2 or more other designees, as determined by the Secretary of Health and Human Services, at least one of whom has expertise in risk factors associated with the development or the progression of Alzheimer's.''; and (ii) in subparagraph (B)-- (I) in the matter preceding clause (i), by striking ``12'' and inserting ``15''; (II) in clause (v)-- (aa) by striking ``2 researchers'' and inserting ``3 researchers''; and (bb) by striking ``; and'' and inserting ``, including at least one researcher with demonstrated experience in recruitment and retention of underrepresented groups into research or clinical trials related to dementia;''; (III) in clause (vi), by striking the period and inserting a semicolon; and (IV) by adding at the end the following: ``(vii) 1 individual with a diagnosis of Alzheimer's disease; and ``(viii) 1 representative from a historically underserved population whose lifetime risk for developing Alzheimer's is markedly higher than that of other populations.''; (B) in paragraph (5)-- (i) in subparagraph (A)-- (I) by striking ``an initial evaluation'' and inserting ``annual evaluations''; and (II) by striking ``research, clinical'' and inserting ``research, risk reduction, public health, clinical''; (ii) in subparagraph (B), by striking ``initial''; (iii) in subparagraph (C)-- (I) in the matter preceding clause (i), by striking ``initial''; and (II) in clause (ii), by inserting ``and reduce disparities'' before the semicolon; and (iv) in subparagraph (D), by striking ``annually thereafter, an evaluation'' and inserting ``annual evaluations''; and (C) in paragraph (6), by striking ``2025'' and inserting ``2035''; (4) in subsection (g)-- (A) in paragraph (1)-- (i) by adding ``and'' after the semicolon; (ii) by striking ``that includes an evaluation'' and inserting ``that includes-- ``(A) an evaluation;''; and (iii) by adding at the end the following: ``(B) a summary of the Secretary's process for identifying and updating what conditions constitute Alzheimer's disease;''; and (B) in paragraph (3)(A)(ii), by inserting ``and reduce disparities'' before the semicolon; and [[Page 138 STAT. 1564]] (5) in subsection (h), by striking ``2025'' and inserting ``2035''. Approved October 1, 2024. LEGISLATIVE HISTORY--S. 133 (H.R. 619):
--------------------------------------------------------------------------- HOUSE REPORTS: No. 118-526 (Comm. on Energy and Commerce) accompanying H.R. 619.
CONGRESSIONAL RECORD, Vol. 170 (2024): July 30, considered and passed Senate. Sept. 23, considered and passed House. <all>