Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023

II Calendar No. 201 118TH CONGRESS 1ST SESSION S. 1852 To amend the Public Health Service Act to reauthorize a sickle cell disease prevention and treatment demonstration program. IN THE SENATE OF THE UNITED STATES JUNE 7, 2023 Mr. SCOTT of South Carolina (for himself, Mr. BOOKER, and Mr. WARNOCK) introduced the following bill; which was read twice and referred to the Committee on Health, Education, Labor, and Pensions SEPTEMBER 6, 2023 Reported by Mr. SANDERS, without amendment A BILL To amend the Public Health Service Act to reauthorize a sickle cell disease prevention and treatment demonstra- tion program. Be it enacted by the Senate and House of Representa- 1 tives of the United States of America in Congress assembled, 2 SECTION 1. SHORT TITLE. 3 This Act may be cited as the ‘‘Sickle Cell Disease 4 and Other Heritable Blood Disorders Research, Surveil- 5 lance, Prevention, and Treatment Act of 2023’’. 6 VerDate Sep 11 2014 01:18 Sep 07, 2023 Jkt 039200 PO 00000 Frm 00001 Fmt 6652 Sfmt 6201 E:\BILLS\S1852.RS S1852 pbinns on DSKJLVW7X2PROD with $$_JOB 2 •S 1852 RS SEC. 2. SICKLE CELL DISEASE TREATMENT PREVENTION 1 AND TREATMENT. 2 (a) IN GENERAL.—Section 1106(b) of the Public 3 Health Service Act (42 U.S.C. 300b–5(b)) is amended— 4 (1) in paragraph (1)(A)(iii), by striking ‘‘pre- 5 vention and treatment of sickle cell disease’’ and in- 6 serting ‘‘treatment of sickle cell disease and the pre- 7 vention and treatment of complications of sickle cell 8 disease’’; 9 (2) in paragraph (2)(D), by striking ‘‘preven- 10 tion and treatment of sickle cell disease’’ and insert- 11 ing ‘‘treatment of sickle cell disease and the preven- 12 tion and treatment of complications of sickle cell dis- 13 ease’’; 14 (3) in paragraph (3)— 15 (A) in subparagraph (A), by striking 16 ‘‘enter into a contract with’’ and inserting 17 ‘‘make a grant to, or enter into a contract or 18 cooperative agreement with,’’; and 19 (B) in subparagraph (B), in each of 20 clauses (ii) and (iii), by striking ‘‘prevention 21 and treatment of sickle cell disease’’ and insert- 22 ing ‘‘treatment of sickle cell disease and the 23 prevention and treatment of complications of 24 sickle cell disease’’; and 25 VerDate Sep 11 2014 01:18 Sep 07, 2023 Jkt 039200 PO 00000 Frm 00002 Fmt 6652 Sfmt 6201 E:\BILLS\S1852.RS S1852 pbinns on DSKJLVW7X2PROD with $$_JOB 3 •S 1852 RS (4) in paragraph (6), by striking ‘‘$4,455,000 1 for each of fiscal years 2019 through 2023’’ and in- 2 serting ‘‘$8,205,000 for each of fiscal years 2024 3 through 2028’’. 4 (b) SENSE OF CONGRESS.—It is the sense of Con- 5 gress that further research should be undertaken to ex- 6 pand the understanding of the causes of, and to find cures 7 for, heritable blood disorders, including sickle cell disease. 8 VerDate Sep 11 2014 01:18 Sep 07, 2023 Jkt 039200 PO 00000 Frm 00003 Fmt 6652 Sfmt 6201 E:\BILLS\S1852.RS S1852 pbinns on DSKJLVW7X2PROD with $$_JOB Calendar No. 201 118TH CONGRESS 1ST SESSION S. 1852 A BILL To amend the Public Health Service Act to reau- thorize a sickle cell disease prevention and treat- ment demonstration program. SEPTEMBER 6, 2023 Reported without amendment VerDate Sep 11 2014 01:18 Sep 07, 2023 Jkt 039200 PO 00000 Frm 00004 Fmt 6651 Sfmt 6651 E:\BILLS\S1852.RS S1852 pbinns on DSKJLVW7X2PROD with $$_JOB