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I
116TH CONGRESS
2D SESSION
H. R. 5691
To require the Secretary to conduct a study and issue a report on the
affordability of insulin.
IN THE HOUSE OF REPRESENTATIVES
JANUARY 28, 2020
Ms. CRAIG (for herself, Mr. GUEST, Mr. STAUBER, and Mr. PHILLIPS) intro-
duced the following bill; which was referred to the Committee on Energy
and Commerce
A BILL
To require the Secretary to conduct a study and issue a
report on the affordability of insulin.
Be it enacted by the Senate and House of Representa-
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tives of the United States of America in Congress assembled,
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SECTION 1. SHORT TITLE.
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This Act may be cited as the ‘‘Insulin Affordability
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Data Collection Act’’.
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SEC. 2. STUDY AND REPORT ON THE AFFORDABILITY OF
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INSULIN.
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The Secretary of Health and Human Services (re-
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ferred to in this section as the ‘‘Secretary’’), acting
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through the Assistant Secretary for Planning and Evalua-
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tion, shall—
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(1) conduct a study that examines—
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(A) for each type or classification of diabe-
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tes (including type 1 diabetes, type 2 diabetes,
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gestational diabetes, and other conditions caus-
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ing reliance on insulin), the effect of the afford-
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ability of insulin on—
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(i) adherence to insulin prescriptions;
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(ii) rates of diabetic ketoacidosis;
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(iii) downstream impacts of insulin
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adherence, including rates of dialysis treat-
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ment and end-stage renal disease;
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(iv) spending by Federal health pro-
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grams on acute episodes that could have
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been averted by adhering to an insulin pre-
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scription; and
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(v) other factors, as appropriate, to
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understand the impacts of insulin afford-
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ability on health outcomes, Federal Gov-
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ernment spending (including under the
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Medicare program under title XVIII of the
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Social Security Act (42 U.S.C. 1395 et
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seq.) and the Medicaid program under title
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XIX of the Social Security Act (42 U.S.C.
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•HR 5691 IH
1396 et seq.)), and insured and uninsured
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individuals with diabetes; and
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(B) among individuals who are unable to
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afford insulin, the numbers of such individ-
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uals—
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(i) who are uninsured;
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(ii) who are covered under private
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health insurance; and
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(iii) who are covered under public
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health insurance programs; and
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(2) not later than 2 years after the date of en-
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actment of this Act, submit to Congress a report on
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the study conducted under paragraph (1).
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