A resolution designating May 15, 2021, as "National MPS Awareness Day".

III 117TH CONGRESS 1ST SESSION S. RES. 235 Designating May 15, 2021, as ‘‘National MPS Awareness Day’’. IN THE SENATE OF THE UNITED STATES MAY 25, 2021 Mr. BENNET (for himself and Mr. GRAHAM) submitted the following resolution; which was considered and agreed to RESOLUTION Designating May 15, 2021, as ‘‘National MPS Awareness Day’’. Whereas mucopolysaccharidosis (referred to in this preamble as ‘‘MPS’’) are a group of genetically determined lysosomal storage diseases that render the human body incapable of producing certain enzymes needed to break down complex carbohydrates; Whereas MPS diseases cause complex carbohydrates to be stored in almost every cell in the body, which progres- sively leads to cellular damage; Whereas the cellular damage caused by MPS— (1) adversely affects the human body by damaging the heart, lungs, bones, central nervous system, and other internal organs; and VerDate Sep 11 2014 01:57 May 26, 2021 Jkt 019200 PO 00000 Frm 00001 Fmt 6652 Sfmt 6300 E:\BILLS\SR235.ATS SR235 pbinns on DSKJLVW7X2PROD with BILLS 2 •SRES 235 ATS (2) often results in intellectual disabilities, short stature, corneal damage, joint stiffness, loss of mobility, speech and hearing impairment, heart disease, hyper- activity, chronic respiratory problems, and, most pain- fully, a drastically shortened life span; Whereas symptoms of MPS are usually not apparent at birth; Whereas, without treatment, the life expectancy of an indi- vidual afflicted with MPS begins to decrease at a very early stage in the life of that individual; Whereas research has resulted in the development of limited treatments for some MPS diseases; Whereas, as of the date of adoption of this resolution, prom- ising advancements in the pursuit of treatments for addi- tional MPS diseases are underway; Whereas, despite the creation of new remedies, the blood- brain barrier continues to be a significant impediment to effectively treating the brain, which prevents the treat- ment of many of the symptoms of MPS; Whereas the quality of life of individuals afflicted with MPS and the treatments available to those individuals will be enhanced through the development of early detection and early intervention techniques; Whereas treatments for and research advancements relating to MPS are limited by a lack of awareness about MPS diseases; Whereas the lack of awareness about MPS diseases extends to individuals within the medical community; Whereas the cellular damage caused by MPS makes MPS a model for the study of many other degenerative genetic diseases; and VerDate Sep 11 2014 01:57 May 26, 2021 Jkt 019200 PO 00000 Frm 00002 Fmt 6652 Sfmt 6300 E:\BILLS\SR235.ATS SR235 pbinns on DSKJLVW7X2PROD with BILLS 3 •SRES 235 ATS Whereas the development of effective therapies and a poten- tial cure for MPS diseases can be accomplished by in- creased awareness, research, data collection, and informa- tion distribution: Now, therefore, be it Resolved, That the Senate— 1 (1) designates May 15, 2021, as ‘‘National 2 MPS Awareness Day’’; and 3 (2) supports the goals and ideals of National 4 MPS Awareness Day. 5 Æ VerDate Sep 11 2014 01:57 May 26, 2021 Jkt 019200 PO 00000 Frm 00003 Fmt 6652 Sfmt 6301 E:\BILLS\SR235.ATS SR235 pbinns on DSKJLVW7X2PROD with BILLS