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II
116TH CONGRESS
1ST SESSION
S. 1404
To amend the Public Health Service Act to address the increased burden
that maintaining the health and hygiene of infants and toddlers places
on families in need, the resultant adverse health effects on children
and families, and the limited child care options available for infants
and toddlers who lack sufficient diapers, and for other purposes.
IN THE SENATE OF THE UNITED STATES
MAY 9, 2019
Ms. DUCKWORTH (for herself and Mr. CASEY) introduced the following bill;
which was read twice and referred to the Committee on Finance
A BILL
To amend the Public Health Service Act to address the
increased burden that maintaining the health and hy-
giene of infants and toddlers places on families in need,
the resultant adverse health effects on children and fami-
lies, and the limited child care options available for in-
fants and toddlers who lack sufficient diapers, and for
other purposes.
Be it enacted by the Senate and House of Representa-
1
tives of the United States of America in Congress assembled,
2
SECTION 1. SHORT TITLE.
3
This Act may be cited as the ‘‘End Diaper Need Act
4
of 2019’’.
5
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SEC. 2. DIAPER DISTRIBUTION DEMONSTRATION PROJECT.
1
Part P of title III of the Public Health Service Act
2
(42 U.S.C. 280g et seq.) is amended by adding at the end
3
the following:
4
‘‘SEC. 399V–7. DIAPER DISTRIBUTION DEMONSTRATION
5
PROGRAM.
6
‘‘(a) ESTABLISHMENT.—The Secretary shall make
7
grants to assist eligible entities in conducting demonstra-
8
tion projects that implement and evaluate strategies to
9
help low-income families address the diaper needs of in-
10
fants and toddlers.
11
‘‘(b) DESIGN OF PROGRAM.—In carrying out the
12
grant program under subsection (a), the Secretary shall—
13
‘‘(1) consult with relevant stakeholders, includ-
14
ing agencies, professional associations, and nonprofit
15
organizations, on the design of the program; and
16
‘‘(2) design the program in such a way that the
17
program—
18
‘‘(A) decreases diaper need in low-income
19
families and meets the unmet diaper needs of
20
infants and toddlers in such families through—
21
‘‘(i) the distribution of free diapers
22
and diapering supplies;
23
‘‘(ii) community outreach to assist in
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participation in existing diaper distribution
25
programs; or
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‘‘(iii) improving access to diapers and
1
diapering supplies as part of a comprehen-
2
sive service; and
3
‘‘(B) increases the ability of communities
4
and low-income families in such communities to
5
provide for the diaper needs of infants and tod-
6
dlers.
7
‘‘(c) ELIGIBLE ENTITIES.—To be eligible for a grant
8
under this section, an entity shall—
9
‘‘(1) be a State or local governmental entity, an
10
Indian tribe or tribal organization (as defined in sec-
11
tion 4 of the Indian Self-Determination and Edu-
12
cation Assistance Act), or a nonprofit organization
13
described in section 501(c)(3) of the Internal Rev-
14
enue Code of 1986 and exempt from taxation under
15
section 501(a) of such Code;
16
‘‘(2) have experience in the area of—
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‘‘(A) community distributions of basic need
18
services,
including
experience
collecting,
19
warehousing, and distributing basic necessities
20
such as diapers, food, or menstrual products;
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‘‘(B) child care;
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‘‘(C) child development activities in low-in-
23
come communities; or
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‘‘(D) motherhood, fatherhood, or parent-
1
education efforts serving low-income parents of
2
young children;
3
‘‘(3) demonstrate competency to implement a
4
project, provide fiscal accountability, collect data,
5
and prepare reports and other necessary documenta-
6
tion;
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‘‘(4) demonstrate a willingness to share infor-
8
mation with researchers, practitioners, and other in-
9
terested parties; and
10
‘‘(5) submit to the Secretary a description of
11
the design of the evaluation to be carried out under
12
subsection (d)(2) and receive the Secretary’s ap-
13
proval of such design based on a determination that
14
such design is rigorous and is likely to yield informa-
15
tion that is credible and useful to other States.
16
‘‘(d) USE OF FUNDS.—Amounts provided through a
17
grant under this section shall be used to conduct a dem-
18
onstration project to implement and evaluate strategies to
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help low-income families to address the diaper needs of
20
infants and toddlers, which may include any of the fol-
21
lowing:
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‘‘(1) Paying for the purchase of diapers and
23
diapering supplies and funding diaper distribution
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demonstration projects that serve low-income fami-
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lies with one or more children 3 years of age or
1
younger.
2
‘‘(2) Using not more than 25 percent of the
3
funds received by the grantee under this section,
4
evaluating the effect of activities under paragraph
5
(1) on mitigating the health and developmental risks
6
of unmet diaper need among infants, toddlers, and
7
other family members in low-income families, includ-
8
ing the risks of diaper dermatitis, urinary tract in-
9
fections, and parental and child depression and anx-
10
iety.
11
‘‘(3) Integrating activities under paragraph (1)
12
with other basic needs assistance programs serving
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eligible children and their families, including the fol-
14
lowing:
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‘‘(A) Programs funded by the temporary
16
assistance for needy families program under
17
part A of title IV of the Social Security Act, in-
18
cluding the State maintenance of effort provi-
19
sions of such program.
20
‘‘(B) Programs designed to support the
21
health of eligible children, such as the Chil-
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dren’s Health Insurance Program under title
23
XXI of the Social Security Act, the Medicaid
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program under title XIX of such Act, or State-
1
funded health care programs.
2
‘‘(C) Programs funded through the special
3
supplemental nutrition program for women, in-
4
fants, and children under section 17 of the
5
Child Nutrition Act of 1966.
6
‘‘(D) Programs that offer early home vis-
7
iting services, including the nurse-family part-
8
nership programs and the Maternal, infant, and
9
early childhood home visiting program (includ-
10
ing the Tribal home visiting program) under
11
section 511 of the Social Security Act.
12
‘‘(E) Programs to provide improved and
13
affordable access to child care, including pro-
14
grams funded through the Child Care and De-
15
velopment Fund, the temporary assistance for
16
needy families program under part A of title IV
17
of the Social Security Act, or a State-funded
18
program.
19
‘‘(e) NO EFFECT ON OTHER PROGRAMS.—Any as-
20
sistance or benefits received by a family as a result of a
21
project established pursuant to this section shall be dis-
22
regarded for purposes of determining the family’s eligi-
23
bility for, or amount of, benefits under any other Federal
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needs-based programs.
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‘‘(f) REPORTS.—As a condition of receiving a grant
1
under this section for a fiscal year, the grantee shall sub-
2
mit to the Secretary, not later than 6 months after the
3
end of the fiscal year, a report that specifies, by month
4
and fiscal year, the following:
5
‘‘(1) The number of infants and toddlers and
6
the age of the infants and toddlers who received as-
7
sistance from the grantee’s diaper distribution
8
project.
9
‘‘(2) The number of families that have received
10
assistance from the grantee’s diaper distribution
11
project.
12
‘‘(3) The number of diapers, and the number of
13
each type of diapering supply, distributed under the
14
grantee’s diaper distribution project.
15
‘‘(4) The ZIP Code or ZIP Codes where the
16
grantee distributed diapers and diaper supplies.
17
‘‘(5) The method or methods the grantee uses
18
to distribute diapers and diapering supplies.
19
‘‘(6) Such other information as the Secretary
20
may specify.
21
‘‘(g) EVALUATION.—The Secretary, in consultation
22
with each grantee under this section, shall—
23
‘‘(1) not later than 2 years after the date of en-
24
actment of the End Diaper Need Act of 2019—
25
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‘‘(A) complete an evaluation of the effec-
1
tiveness of the program carried out pursuant to
2
this section;
3
‘‘(B) submit to the relevant congressional
4
committees a report on the results of such eval-
5
uation; and
6
‘‘(C) publish the results of the evaluation
7
on the internet website of the Department of
8
Health and Human Services; and
9
‘‘(2)(A) not later than 3 years after the date of
10
enactment of the End Diaper Need Act of 2019, up-
11
date the evaluation required by paragraph (1)(A);
12
and
13
‘‘(B) not later than 90 days after completion of
14
the updated evaluation under subparagraph (A)—
15
‘‘(i) submit to the relevant congressional
16
committees a report describing the results of
17
such updated evaluation; and
18
‘‘(ii) publish the results of such evaluation
19
on the internet website of the Department of
20
Health and Human Services.
21
‘‘(h) DEFINITIONS.—In this section:
22
‘‘(1) DIAPER.—The term ‘diaper’ means an ab-
23
sorbent garment that—
24
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‘‘(A) is washable or disposable that may be
1
worn by an infant or toddler who is not toilet-
2
trained; and
3
‘‘(B) if disposable—
4
‘‘(i) does not use any latex or common
5
allergens; and
6
‘‘(ii) meets or exceeds the quality
7
standards for diapers commercially avail-
8
able through retail sale in the following
9
categories:
10
‘‘(I) Absorbency (with acceptable
11
rates for first and second wetting).
12
‘‘(II) Waterproof outer cover.
13
‘‘(III) Flexible leg openings.
14
‘‘(IV) Refastening closures.
15
‘‘(2) DIAPERING
SUPPLIES.—The term ‘dia-
16
pering supplies’ means items, including diaper wipes
17
and diaper cream, necessary to ensure that a child
18
using a diaper is properly cleaned and protected
19
from diaper rash.
20
‘‘(3) ELIGIBLE
CHILD.—The term ‘eligible
21
child’ means a child who—
22
‘‘(A) has not attained 4 years of age; and
23
‘‘(B) is a member of a low-income family.
24
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‘‘(4) FEDERAL
POVERTY
LINE.—The term
1
‘Federal poverty line’ means the Federal poverty line
2
as defined by the Office of Management and Budget
3
and revised annually in accordance with section
4
673(2) of the Omnibus Budget Reconciliation Act of
5
1981 applicable to a family of the size involved.
6
‘‘(5) LOW-INCOME.—The term ‘low-income’,
7
with respect to a family, means a family whose self-
8
certified income is not more than 200 percent of the
9
Federal poverty line.
10
‘‘(i) AUTHORIZATION OF APPROPRIATIONS.—
11
‘‘(1) IN GENERAL.—To carry out this section,
12
there is authorized to be appropriated $100,000,000
13
for each of fiscal years 2020 through 2023.
14
‘‘(2) AVAILABILITY
OF
FUNDS.—Funds pro-
15
vided to a grantee under this section for a fiscal
16
year may be expended by the grantee only in such
17
fiscal year or the succeeding fiscal year.’’.
18
SEC. 3. IMPROVING ACCESS TO DIAPERS FOR MEDICALLY
19
COMPLEX CHILDREN.
20
Section 1915(c) of the Social Security Act (42 U.S.C.
21
1396n(c)) is amended by adding at the end the following
22
new paragraph:
23
‘‘(11)(A) In the case of any waiver under this sub-
24
section that provides medical assistance to a medically
25
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complex child who has been diagnosed with bowel or blad-
1
der incontinence, a bowel or bladder condition that causes
2
excess urine or stool (such as short gut syndrome or diabe-
3
tes insipidus), or a severe skin condition that causes skin
4
erosions (such as epidermolysis bullosa), such medical as-
5
sistance shall include, for the duration of the waiver, the
6
provision of 200 medically necessary diapers per month
7
and diapering supplies. Such medical assistance may in-
8
clude the provision of medically necessary diapers in
9
amounts greater than 200 if a licensed health care pro-
10
vider (such as a physician, nurse practitioner, or physician
11
assistant) specifies that such greater amounts are nec-
12
essary for such medically complex child.
13
‘‘(B) For purposes of this paragraph—
14
‘‘(i) the term ‘medically complex child’ means
15
an individual who is at least three years of age and
16
for whom a licensed health care provider has pro-
17
vided a diagnosis of one or more significant chronic
18
conditions;
19
‘‘(ii) the term ‘medically necessary diaper’
20
means an absorbent garment that is—
21
‘‘(I) washable or disposable; and
22
‘‘(II) worn by a medically complex child
23
who has been diagnosed with a condition de-
24
scribed in subparagraph (A) and needs such
25
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garment to correct or ameliorate such condition;
1
and
2
‘‘(iii) the term ‘diapering supplies’ means items,
3
including diaper wipes and diaper creams, necessary
4
to ensure that a medically complex child who has
5
been diagnosed with a condition described in sub-
6
paragraph (A) and uses a medically necessary diaper
7
is properly cleaned and protected from diaper rash.’’.
8
SEC. 4. INCLUSION OF DIAPERS AND DIAPERING SUPPLIES
9
AS QUALIFIED MEDICAL EXPENSES.
10
(a)
HEALTH
SAVINGS
ACCOUNTS.—Section
11
223(d)(2) of the Internal Revenue Code of 1986 is amend-
12
ed—
13
(1) by adding at the end of subparagraph (A)
14
the following: ‘‘For purposes of this subparagraph,
15
amounts
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